Developing and testing a cognitive bolt-on for the EQ-5D-Y (Youth).

Ludwig K, Surmann B, Räcker E, Greiner W (2021)
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 31: 215–229.

Zeitschriftenaufsatz | Veröffentlicht | Englisch
 
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Abstract / Bemerkung
PURPOSE: The aim of this study was to develop and test a cognitive dimension as a bolt-on for the German version of the EQ-5D-Y (Youth).; METHODS: A literature review and six focus groups with children and adolescents were used to develop the cognitive dimension for the EQ-5D-Y. In a two-phase pretest, the acceptability, feasibility and performance of this dimension were assessed (phase 1: qualitative face-to-face interviews, phase 2: standard pretest in a clinical setting). In total, 280 children and adolescents participated in this study.; RESULTS: School performance, concentration, memory and learning ability represent the most important components of cognitive functioning in children and adolescents. Hence, those components were incorporated into the cognitive dimension of the EQ-5D-Y by adding four items. For children and adolescents living with a rheumatic disorder or type 1 diabetes mellitus, the EQ-5D-Y plus a cognitive bolt-on demonstrated good acceptability, feasibility and performance. The cognitive items improved the explanatory power for the EQ visual analogue scale (EQ-VAS). Factor analysis has shown that a reduction of the cognitive bolt-on into one or two item(s) is justifiable.; CONCLUSION: By enhancing the EQ-5D-Y with a cognitive bolt-on, we developed an instrument that incorporates current findings on Health-Related Quality of Life (HRQoL) and is suitable for the target population. Empirical results of this study show that cognitive functioning is an important part of HRQoL assessment in children and adolescents. The inclusion of a cognitive dimension in the EQ-5D-Y improves the HRQoL measurement.
Stichworte
EQ-5D-Y · Bolt-on · Cognitive dimension · Health-related quality of life · Adolescents · Children
Erscheinungsjahr
2021
Zeitschriftentitel
Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation
Band
31
Seite(n)
215–229
eISSN
1573-2649
Finanzierungs-Informationen
Open-Access-Publikationskosten wurden durch die Universität Bielefeld im Rahmen des DEAL-Vertrags gefördert.
Page URI
https://pub.uni-bielefeld.de/record/2955514

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Ludwig K, Surmann B, Räcker E, Greiner W. Developing and testing a cognitive bolt-on for the EQ-5D-Y (Youth). Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 2021;31:215–229.
Ludwig, K., Surmann, B., Räcker, E., & Greiner, W. (2021). Developing and testing a cognitive bolt-on for the EQ-5D-Y (Youth). Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 31, 215–229. https://doi.org/10.1007/s11136-021-02899-x
Ludwig, Kristina, Surmann, Bastian, Räcker, Eva, and Greiner, Wolfgang. 2021. “Developing and testing a cognitive bolt-on for the EQ-5D-Y (Youth).”. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 31: 215–229.
Ludwig, K., Surmann, B., Räcker, E., and Greiner, W. (2021). Developing and testing a cognitive bolt-on for the EQ-5D-Y (Youth). Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 31, 215–229.
Ludwig, K., et al., 2021. Developing and testing a cognitive bolt-on for the EQ-5D-Y (Youth). Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, 31, p 215–229.
K. Ludwig, et al., “Developing and testing a cognitive bolt-on for the EQ-5D-Y (Youth).”, Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation, vol. 31, 2021, pp. 215–229.
Ludwig, K., Surmann, B., Räcker, E., Greiner, W.: Developing and testing a cognitive bolt-on for the EQ-5D-Y (Youth). Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation. 31, 215–229 (2021).
Ludwig, Kristina, Surmann, Bastian, Räcker, Eva, and Greiner, Wolfgang. “Developing and testing a cognitive bolt-on for the EQ-5D-Y (Youth).”. Quality of life research : an international journal of quality of life aspects of treatment, care and rehabilitation 31 (2021): 215–229.
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2022-07-26T07:23:16Z
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