Universität zu Köln

Murtagh, Fliss E. M. ORCID: 0000-0003-1289-3726, Ramsenthaler, Christina ORCID: 0000-0002-9996-1818, Firth, Alice ORCID: 0000-0003-0726-0502, Groeneveld, Esther I., Lovell, Natasha, Simon, Steffen T. ORCID: 0000-0002-6884-1813, Denzel, Johannes, Guo, Ping ORCID: 0000-0003-0979-7047, Bernhardt, Florian ORCID: 0009-0006-6999-1975, Schildmann, Eva, van Oorschot, Birgitt, Hodiamont, Farina ORCID: 0000-0001-7351-7092, Streitwieser, Sabine, Higginson, Irene J. ORCID: 0000-0002-3687-1313 and Bausewein, Claudia ORCID: 0000-0002-0958-3041 (2019). A brief, patient- and proxy-reported outcome measure in advanced illness: Validity, reliability and responsiveness of the Integrated Palliative care Outcome Scale (IPOS). Palliat. Med., 33 (8). S. 1045 - 1058. LONDON: SAGE PUBLICATIONS LTD. ISSN 1477-030X

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Abstract

Background: Few measures capture the complex symptoms and concerns of those receiving palliative care. Aim: To validate the Integrated Palliative care Outcome Scale, a measure underpinned by extensive psychometric development, by evaluating its validity, reliability and responsiveness to change. Design: Concurrent, cross-cultural validation study of the Integrated Palliative care Outcome Scale - both (1) patient self-report and (2) staff proxy-report versions. We tested construct validity (factor analysis, known-group comparisons, and correlational analysis), reliability (internal consistency, agreement, and test-retest reliability), and responsiveness (through longitudinal evaluation of change). Setting/participants: In all, 376 adults receiving palliative care, and 161 clinicians, from a range of settings in the United Kingdom and Germany Results: We confirm a three-factor structure (Physical Symptoms, Emotional Symptoms and Communication/Practical Issues). Integrated Palliative care Outcome Scale shows strong ability to distinguish between clinically relevant groups; total Integrated Palliative care Outcome Scale and Integrated Palliative care Outcome Scale subscale scores were higher - reflecting more problems - in those patients with 'unstable' or 'deteriorating' versus 'stable' Phase of Illness (F = 15.1, p < 0.001). Good convergent and discriminant validity to hypothesised items and subscales of the Edmonton Symptom Assessment System and Functional Assessment of Cancer Therapy-General is demonstrated. The Integrated Palliative care Outcome Scale shows good internal consistency (alpha = 0.77) and acceptable to good test-retest reliability (60% of items k(w) > 0.60). Longitudinal validity in form of responsiveness to change is good. Conclusion: The Integrated Palliative care Outcome Scale is a valid and reliable outcome measure, both in patient self-report and staff proxy-report versions. It can assess and monitor symptoms and concerns in advanced illness, determine the impact of healthcare interventions, and demonstrate quality of care. This represents a major step forward internationally for palliative care outcome measurement.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Murtagh, Fliss E. M. UNSPECIFIED orcid.org/0000-0003-1289-3726 UNSPECIFIED Ramsenthaler, Christina UNSPECIFIED orcid.org/0000-0002-9996-1818 UNSPECIFIED Firth, Alice UNSPECIFIED orcid.org/0000-0003-0726-0502 UNSPECIFIED Groeneveld, Esther I. UNSPECIFIED UNSPECIFIED UNSPECIFIED Lovell, Natasha UNSPECIFIED UNSPECIFIED UNSPECIFIED Simon, Steffen T. UNSPECIFIED orcid.org/0000-0002-6884-1813 UNSPECIFIED Denzel, Johannes UNSPECIFIED UNSPECIFIED UNSPECIFIED Guo, Ping UNSPECIFIED orcid.org/0000-0003-0979-7047 UNSPECIFIED Bernhardt, Florian UNSPECIFIED orcid.org/0009-0006-6999-1975 UNSPECIFIED Schildmann, Eva UNSPECIFIED UNSPECIFIED UNSPECIFIED van Oorschot, Birgitt UNSPECIFIED UNSPECIFIED UNSPECIFIED Hodiamont, Farina UNSPECIFIED orcid.org/0000-0001-7351-7092 UNSPECIFIED Streitwieser, Sabine UNSPECIFIED UNSPECIFIED UNSPECIFIED Higginson, Irene J. UNSPECIFIED orcid.org/0000-0002-3687-1313 UNSPECIFIED Bausewein, Claudia UNSPECIFIED orcid.org/0000-0002-0958-3041 UNSPECIFIED
URN:	urn:nbn:de:hbz:38-143637
DOI:	10.1177/0269216319854264
Journal or Publication Title:	Palliat. Med.
Volume:	33
Number:	8
Page Range:	S. 1045 - 1058
Date:	2019
Publisher:	SAGE PUBLICATIONS LTD
Place of Publication:	LONDON
ISSN:	1477-030X
Language:	English
Faculty:	Faculty of Medicine
Divisions:	Faculty of Medicine > Sonstiges > Zentrum für Versorgungsforschung Köln
Subjects:	Medical sciences Medicine
Uncontrolled Keywords:	Keywords Language SYMPTOM ASSESSMENT SYSTEM; QUALITY-OF-LIFE; LONG-TERM-CARE; CANCER-PATIENTS; PSYCHOMETRIC VALIDATION; IMPORTANT DIFFERENCE; CLINICAL CARE; HEALTH-STATUS; END; DISEASE Multiple languages Health Care Sciences & Services; Public, Environmental & Occupational Health; Medicine, General & Internal Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/14363