Pruefe, Jenny, Dierks, Marie-Luise, Bethe, Dirk, Oldhafer, Martina, Muether, Silvia, Thumfart, Julia ORCID: 0000-0003-1162-5295, Feldkoetter, Markus, Buescher, Anja, Sauerstein, Katja, Hansen, Matthias, Pohl, Martin, Drube, Jens, Thiel, Florian, Rieger, Susanne, John, Ulrike, Taylan, Christina, Dittrich, Katalin, Hollenbach, Sabine, Klaus, Guenter, Fehrenbach, Henry, Kranz, Birgitta, Montoya, Carmen, Lange-Sperandio, Baerbel, Ruckenbrod, Bettina, Billing, Heiko, Staude, Hagen, Brunkhorst, Reinhard, Rusai, Krisztina, Pape, Lars and Kreuzer, Martin (2017). Transition structures and timing of transfer from paediatric to adult-based care after kidney transplantation in Germany: a qualitative study. BMJ Open, 7 (6). LONDON: BMJ PUBLISHING GROUP. ISSN 2044-6055

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Abstract

Objectives It is known that transition, as a shift of care, marks a vulnerable phase in the adolescents' lives with an increased risk for non-adherence and allograft failure. Still, the transition process of adolescents and young adults living with a kidney transplant in Germany is not well defined. The present research aims to assess transition-relevant structures for this group of young people. Special attention is paid to the timing of the process. Setting In an observational study, we visited 21 departments of paediatric nephrology in Germany. Participants were doctors (n=19), nurses (n=14) and psychosocial staff (n=16) who were responsible for transition in the relevant centres. Structural elements were surveyed using a short questionnaire. The experiential viewpoint was collected by interviews which were transcribedverbatim before thematic analysis was performed. Results This study highlights that professionals working within paediatric nephrology in Germany are well aware of the importance of successful transition. Key elements of transitional care are well understood and mutually agreed on. Nonetheless, implementation within daily routine seems challenging, and the absence of written, structured procedures may hamper successful transition. Conclusions While professionals aim for an individual timing of transfer based on medical, social, emotional and structural aspects, rigid regulations on transfer age as given by the relevant health authorities add on to the challenge.

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Pruefe, JennyUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Dierks, Marie-LuiseUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Bethe, DirkUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Oldhafer, MartinaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Muether, SilviaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Thumfart, JuliaUNSPECIFIEDorcid.org/0000-0003-1162-5295UNSPECIFIED
Feldkoetter, MarkusUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Buescher, AnjaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Sauerstein, KatjaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hansen, MatthiasUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Pohl, MartinUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Drube, JensUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Thiel, FlorianUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Rieger, SusanneUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
John, UlrikeUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Taylan, ChristinaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Dittrich, KatalinUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Hollenbach, SabineUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Klaus, GuenterUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Fehrenbach, HenryUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kranz, BirgittaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Montoya, CarmenUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Lange-Sperandio, BaerbelUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ruckenbrod, BettinaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Billing, HeikoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Staude, HagenUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Brunkhorst, ReinhardUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Rusai, KrisztinaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Pape, LarsUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kreuzer, MartinUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-228312
DOI: 10.1136/bmjopen-2016-015593
Journal or Publication Title: BMJ Open
Volume: 7
Number: 6
Date: 2017
Publisher: BMJ PUBLISHING GROUP
Place of Publication: LONDON
ISSN: 2044-6055
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
HEALTH-CARE; STAR(X) QUESTIONNAIRE; SELF-MANAGEMENT; YOUNG-ADULTS; ADOLESCENTS; RECIPIENTS; READINESS; VALIDATION; ADHERENCE; SERVICESMultiple languages
Medicine, General & InternalMultiple languages
Refereed: Yes
URI: http://kups.ub.uni-koeln.de/id/eprint/22831

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