Universität zu Köln

Grun, Daniel, Pieri, Vannina, Vaillant, Michel and Diederich, Nico J. (2016). Contributory Factors to Caregiver Burden in Parkinson Disease. J. Am. Med. Dir. Assoc., 17 (7). S. 626 - 633. NEW YORK: ELSEVIER SCIENCE INC. ISSN 1538-9375

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Abstract

Background: In Parkinson disease (PD), patients often require burdensome assistance, delivered by informal caregivers (eg, spouse). Design: Prospective questionnaire and clinical-based investigation. Objectives: To investigate both patient-and caregiver-derived factors contributing to caregiver burden (CB). Methods: We assessed, in 59 patient-caregiver pairs, various motor, nonmotor, and cognitive symptoms as well as quality of life by standardized tests and questionnaires. Repercussions on the caregiver were evaluated by Zarit Burden Interview, Health-related Quality of Life (HrQoL), Generalized Anxiety Disorder Assessment-7, Patient Health Questionnaire-9, and the Montreal Cognitive Assessment. Transcultural comparison was ensured by validation of the tests in the 3 used languages. Results: Sleep problems and autonomic dysfunction of the patient strongly impact CB (r = -0.414 to -0.335, P < .01) and HrQoL of the caregiver (r = -0.335 to -0.314, P < .05). Higher CB is less strongly linked with patient's motor impairment (P <. 05). Large time investment, including nocturnal care in 41% of the caregivers, strongly influences CB (P < .001). The mood, but not the cognitive status, of the caregiver is directly linked to CB and HrQoL of the caregiver (P < .01). Conclusion: In PD, the CB is primarily dependent on patients' nonmotor symptoms. Patient care requires considerable time investment and can trigger depression in the caregiver. (C) 2016 AMDA - The Society for Post-Acute and Long-Term Care Medicine.

Item Type:	Journal Article
Creators:	Creators Email ORCID ORCID Put Code Grun, Daniel UNSPECIFIED UNSPECIFIED UNSPECIFIED Pieri, Vannina UNSPECIFIED UNSPECIFIED UNSPECIFIED Vaillant, Michel UNSPECIFIED UNSPECIFIED UNSPECIFIED Diederich, Nico J. UNSPECIFIED UNSPECIFIED UNSPECIFIED
URN:	urn:nbn:de:hbz:38-271610
DOI:	10.1016/j.jamda.2016.03.004
Journal or Publication Title:	J. Am. Med. Dir. Assoc.
Volume:	17
Number:	7
Page Range:	S. 626 - 633
Date:	2016
Publisher:	ELSEVIER SCIENCE INC
Place of Publication:	NEW YORK
ISSN:	1538-9375
Language:	English
Faculty:	Unspecified
Divisions:	Unspecified
Subjects:	no entry
Uncontrolled Keywords:	Keywords Language QUALITY-OF-LIFE; MONTREAL COGNITIVE ASSESSMENT; SOCIETY-SPONSORED REVISION; SCALE MDS-UPDRS; NONMOTOR SYMPTOMS; SLEEP SCALE; PSYCHOMETRIC PROPERTIES; TASK-FORCE; DEPRESSION; RELIABILITY Multiple languages Geriatrics & Gerontology Multiple languages
Refereed:	Yes
URI:	http://kups.ub.uni-koeln.de/id/eprint/27161