Rashedi, Alexandra S., de Roo, Saskia F., Ataman, Lauren M., Edmonds, Maxwell E., Silva, Adelino Amaral, Scarella, Anibal, Horbaczewska, Anna, Anazodo, Antoinette ORCID: 0000-0002-5495-6062, Arvas, Ayse, de Carvalho, Bruno Ramalho, Sartorio, Cassio, Beerendonk, Catharina C. M., Diaz-Garcia, Cesar, Suh, Chang Suk, Melo, Claudia, Andersen, Claus Yding ORCID: 0000-0001-7681-253X, Motta, Eduardo, Greenblatt, Ellen M., Van Moer, Ellen, Zand, Elnaz, Reis, Fernando M. ORCID: 0000-0002-9258-7472, Sanchez, Flor ORCID: 0000-0003-1762-6184, Terrado, Guillermo, Rodrigues, Jhenifer K., de Meneses e Silva, Joao Marcos, Smitz, Johan ORCID: 0000-0002-5857-6542, Medrano, Jose, Lee, Jung Ryeol, Winkler-Crepaz, Katharina, Smith, Kristin, Ferreira Melo e Silva, Ligia Helena, Wildt, Ludwig, Salama, Mahmoud ORCID: 0000-0002-0282-8018, del Mar Andres, Maria, Bourlon, Maria T., Vega, Mario, Chehin, Mauricio Barbour, De Vos, Michel ORCID: 0000-0001-5019-5924, Khrouf, Mohamed, Suzuki, Nao, Azmy, Osama, Fontoura, Paula, Almeida Campos-Junior, Paulo Henrique, Mallmann, Peter, Azambuja, Ricardo, Marinho, Ricardo M., Anderson, Richard A., Jach, Robert, Antunes, Roberto de A., Mitchell, Rod, Fathi, Rouhollah, Adiga, Satish Kumar ORCID: 0000-0002-2897-4697, Takae, Seido, Kim, Seok Hyun, Romero, Sergio ORCID: 0000-0003-0621-8943, Grieco, Silvana Chedid, Shaulov, Talya, Furui, Tatsuro, Almeida-Santos, Teresa, Nelen, Willianne, Jayasinghe, Yasmin, Sugishita, Yodo ORCID: 0000-0003-4315-1370 and Woodruff, Teresa K. (2020). Survey of Fertility Preservation Options Available to Patients With Cancer Around the Globe. JCO Glob. Oncol., 6. S. 331 - 345. ALEXANDRIA: AMER SOC CLINICAL ONCOLOGY. ISSN 2687-8941

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Abstract

PurposeOncofertility focuses on providing fertility and endocrine-sparing options to patients who undergo life-preserving but gonadotoxic cancer treatment. The resources needed to meet patient demand often are fragmented along disciplinary lines. We quantify assets and gaps in oncofertility care on a global scale.MethodsSurvey-based questionnaires were provided to 191 members of the Oncofertility Consortium Global Partners Network, a National Institutes of Health-funded organization. Responses were analyzed to measure trends and regional subtleties about patient oncofertility experiences and to analyze barriers to care at sites that provide oncofertility services.ResultsSixty-three responses were received (response rate, 25%), and 40 were analyzed from oncofertility centers in 28 countries. Thirty of 40 survey results (75%) showed that formal referral processes and psychological care are provided to patients at the majority of sites. Fourteen of 23 respondents (61%) stated that some fertility preservation services are not offered because of cultural and legal barriers. The growth of oncofertility and its capacity to improve the lives of cancer survivors around the globe relies on concentrated efforts to increase awareness, promote collaboration, share best practices, and advocate for research funding.ConclusionThis survey reveals global and regional successes and challenges and provides insight into what is needed to advance the field and make the discussion of fertility preservation and endocrine health a standard component of the cancer treatment plan. As the field of oncofertility continues to develop around the globe, regular assessment of both international and regional barriers to quality care must continue to guide process improvements. (c) 2020 by American Society of Clinical Oncology

Item Type: Journal Article
Creators:
CreatorsEmailORCIDORCID Put Code
Rashedi, Alexandra S.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
de Roo, Saskia F.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ataman, Lauren M.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Edmonds, Maxwell E.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Silva, Adelino AmaralUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Scarella, AnibalUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Horbaczewska, AnnaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Anazodo, AntoinetteUNSPECIFIEDorcid.org/0000-0002-5495-6062UNSPECIFIED
Arvas, AyseUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
de Carvalho, Bruno RamalhoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Sartorio, CassioUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Beerendonk, Catharina C. M.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Diaz-Garcia, CesarUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Suh, Chang SukUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Melo, ClaudiaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Andersen, Claus YdingUNSPECIFIEDorcid.org/0000-0001-7681-253XUNSPECIFIED
Motta, EduardoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Greenblatt, Ellen M.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Van Moer, EllenUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Zand, ElnazUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Reis, Fernando M.UNSPECIFIEDorcid.org/0000-0002-9258-7472UNSPECIFIED
Sanchez, FlorUNSPECIFIEDorcid.org/0000-0003-1762-6184UNSPECIFIED
Terrado, GuillermoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Rodrigues, Jhenifer K.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
de Meneses e Silva, Joao MarcosUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Smitz, JohanUNSPECIFIEDorcid.org/0000-0002-5857-6542UNSPECIFIED
Medrano, JoseUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Lee, Jung RyeolUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Winkler-Crepaz, KatharinaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Smith, KristinUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Ferreira Melo e Silva, Ligia HelenaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Wildt, LudwigUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Salama, MahmoudUNSPECIFIEDorcid.org/0000-0002-0282-8018UNSPECIFIED
del Mar Andres, MariaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Bourlon, Maria T.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Vega, MarioUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Chehin, Mauricio BarbourUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
De Vos, MichelUNSPECIFIEDorcid.org/0000-0001-5019-5924UNSPECIFIED
Khrouf, MohamedUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Suzuki, NaoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Azmy, OsamaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Fontoura, PaulaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Almeida Campos-Junior, Paulo HenriqueUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Mallmann, PeterUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Azambuja, RicardoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Marinho, Ricardo M.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Anderson, Richard A.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Jach, RobertUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Antunes, Roberto de A.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Mitchell, RodUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Fathi, RouhollahUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Adiga, Satish KumarUNSPECIFIEDorcid.org/0000-0002-2897-4697UNSPECIFIED
Takae, SeidoUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Kim, Seok HyunUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Romero, SergioUNSPECIFIEDorcid.org/0000-0003-0621-8943UNSPECIFIED
Grieco, Silvana ChedidUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Shaulov, TalyaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Furui, TatsuroUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Almeida-Santos, TeresaUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Nelen, WillianneUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Jayasinghe, YasminUNSPECIFIEDUNSPECIFIEDUNSPECIFIED
Sugishita, YodoUNSPECIFIEDorcid.org/0000-0003-4315-1370UNSPECIFIED
Woodruff, Teresa K.UNSPECIFIEDUNSPECIFIEDUNSPECIFIED
URN: urn:nbn:de:hbz:38-350803
DOI: 10.1200/JGO.2016.008144
Journal or Publication Title: JCO Glob. Oncol.
Volume: 6
Page Range: S. 331 - 345
Date: 2020
Publisher: AMER SOC CLINICAL ONCOLOGY
Place of Publication: ALEXANDRIA
ISSN: 2687-8941
Language: English
Faculty: Unspecified
Divisions: Unspecified
Subjects: no entry
Uncontrolled Keywords:
KeywordsLanguage
AMERICAN-SOCIETY; QUALITY; IMPACT; WOMENMultiple languages
OncologyMultiple languages
URI: http://kups.ub.uni-koeln.de/id/eprint/35080

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